"Why do you wear those things on your knees?" "Look at Steph, she is so slow. Ha ha!" "Why can't she run and jump like a normal kid?" "Steph you're a freak." These are the refrains that followed me around as a child born with the mildest possible strain of Ataxia, which is a form of Cerebral Palsy. As an adult, I am incredibly fortunate that I now live a "normal" life, have a "normal" [...]
AN INTRODUCTION It is a silent world, a world devoid of sound. It is an abyss of unknown tunes, of unheard melodies, of nameless songs. The world I belong to is a world where I wake up not to the shrill of an alarm clock, where I walk at the edge of the sea, but cannot hear the waves crashing upon the shore, where I cannot hear dogs barking or the birds flutter above me. [...]
Our eldest daughter Monrovia, who is now six and a half years old, was born profoundly deaf. We first heard the words “profound hearing loss” when she was three weeks old, after failing multiple hearing tests. At the time I felt pretty overwhelmed by first-time parenthood, so the idea of parenting a newborn with special needs felt quite heavy and scary. Here’s an excerpt from an email I wrote to friends after the appointment in [...]
Hi I’m Keith. In the early hours of 26th of August 2012 I was found lying paralyzed on the floor next to my bed. I had suffered a seizure while sleeping and fell to the floor. I had broken my neck by fracturing my C4 vertebrae, which has left me to be a quadriplegic. I have no wrist or hand movement. I have regained use of my arms from originally not being able to move [...]
My name is Shaina Cilimberg and I am almost 27 years old. I was diagnosed with Asperger's in the Dark Age, the 2000s. Back then, there was limited knowledge on Asperger's Disorder. It was a time when mental illness was seen as demon possession or an excuse for sin. While Satan does attack everyone's (neurotypical or not) minds, mental illness is not demon possession. Demon possession has more to do with the individual, not with [...]
I am a mom to a child with special needs. This is not something we were prepared for or ever expected. Noah looks like a normal little boy and his disability, for want of a better word, is not visible. It makes it easier and infinitely more difficult for him. Because he is not visibly disabled there are no allowances given for what he battles with every day. He is labelled as naughty, undisciplined, disobedient [...]
Hi, my name is Uel and pre-December 2011 I was an avid rock climber, swam in the sea a lot, gymed, organized adventure camps and helped out at church. But in December 2011 i dived into a river and well, i didn't end up winning any medals for my attempt but did unfortunately break my neck leaving me paralyzed from the chest down..... I was air lifted to hospital where I spent 100 days, eish. [...]
From my friend, Dalene Reyburn: So, I’m honoured to be hanging out with Brett in this bustling corner of the internet to introduce the next Taboo Topics series: people with special needs. I think Brett’s a hero for having the courage to open up these sorts of topics – things that are often ignored or misunderstood or too fraught with pain to be voiced. This series will give parents and others a safe space to [...]